Blog

The story of our first Christmas with Beatrice, in a hospital ward after her heart surgery. A story of struggle, resilience and healing.

The first hours of becoming the mum of a cardiac baby, after a long labour and caesarean, were made even worse by inappropriate nurses.

I decided to complain to the children’s hospital after our last hospital admission. Back story: our daughter Beatrice has Kabuki...

On the R U Ok Day I realised that I'm not ok. Nobody would be ok, in my shoes. I’m not ok, but I’m ok to talk about it.

The life with a special need child feels like a Guernica life. We deal with so much, and others don't see the whole picture.