Blog

The story of our first Christmas with Beatrice, in a hospital ward after her heart surgery. A story of struggle, resilience and healing.

Sometimes, life throws you into impossible situations, and it feels like you're fighting battles on all fronts. But then, magic happens.

Dear Beatrice, I wanted to do something for your birthday, as you’re turning 2, this year. Last year I created a video on socials with...

https://www.youtube.com/watch?v=05ZJDTViEOY&t=1s I posted a brief video taken during a physiotherapy session, where my baby girl is...

For R U Ok Day I reflect on my miscarriage and how traumas affect us at the core of our soul.

[written on Monday 19 August] Seven days ago I had a missed miscarriage.   A bit of background: we have a 21 months old girl with Kabuki...

Sadness is a weird feeling. Out of all the emotions that one can experience, sadness is the least appealing and popular.

They immediately recognise a person who lives with Down syndrome, but Kabuki is different. It feels equally like a curse and a blessing.

This week (well, this month in general) has been particularly hard for our baby: hospital visits, therapies, and the late evening rush to...

The first hours of becoming the mum of a cardiac baby, after a long labour and caesarean, were made even worse by inappropriate nurses.

On the R U Ok Day I realised that I'm not ok. Nobody would be ok, in my shoes. I’m not ok, but I’m ok to talk about it.

They told us it would be a roller coaster. This is what they didn't tell us.

The life with a special need child feels like a Guernica life. We deal with so much, and others don't see the whole picture.